Showing posts with label Trent's long haul. Show all posts
Showing posts with label Trent's long haul. Show all posts

Wednesday, August 17, 2016

Cleared!!




Friday morning we got the results we had been praying for!! His scans are normal and he is clear!! Praise God! 




Trent's neurologist said it is still not clear what happened but it was probably what is called a cavernoma or cavernous malformation of the brain.  To read more about this click here http://brainavm.oci.utoronto.ca/malformations/Cavernomas_index.htm

We asked him what are the chances it could happen again and he couldn't tell us but he reassured us his scans are clear now.  In 3 months we will see him again for a follow-up but no scans, and next May (a year from when it happened) we will do another MRI. 

He told Trent he is free to be a normal kid again!!!!  Trent did a fist pump and said, "YES!!!!!!!"  Charly and I both took a deep breath!

After meeting up with one of our favorite PICU nurses and running a few errands we headed home packed up the camper and headed off for a little family getaway!! Trent got to run, jump, wrestle with his siblings and swim underwater!  We had a great time! 



We feel incredibly blessed by all the prayers, love and support from our family and friends!  Thank you all so much!  We would not be where we are today without all of you!

Love,
Shelby

Tuesday, August 9, 2016

MRI/Angiogram Day

We've been waiting for this day for over a month!  Scans will be done today and we will get the results on Friday! It will be a long couple of days!

A little pre-procedure snack!


"Please Mom!"
"Trent it's 8:45!"
"But mom they taste just like the ones in the hospital!"
"Ok fine;)"
#thanksstarbucks

A quick picture before heading in;)



A quick IV start and some very important questions pertaining to what music Trent would like to listen to! A little Jason Aldean, Rodney Atkins and Casting Crowns please;)


Some pre-procedure explanations and details.


Thumbs up! We are ready!


We are praying they find nothing on these images and Trent gets "cleared" to enjoy
the rest of his summer!!!

Thank you all for your prayers and support!  We would not have made it this far without
all of you! 

God is Good!



Love,
Shelby




Tuesday, July 19, 2016

A day in the life of Trent

Holy cow!  It's been a long time since I blogged, but I love reading other blogs (early in the morning;) so I thought I'd give it a try again,

I like reading A day in the life posts so I thought I'd do one about Trent's "new normal" right now;)

I picked a day that we didn't have a lot planned and tried to remember to get pictures!

Trent has graduated from sleeping in our room to sleeping in the office;)  He is able to do stairs but he still wakes up sometimes during the night with a headache or just not feeling well, so I didn't want him going up and down the stairs in the middle of the night. 


He is our early morning riser, usually before 6:30 but this morning he slept until 7:40!  When he wakes up he goes straight to the big chair and likes to watch T.V.  However, someone got up before him and beat him to his spot:) 



On his way back from the barn after feeding steers.
This was the only other morning picture I got, but the rest of the morning consisted of flying kites, playing on his kindle fire and probably watching Zootopia (for the millionth time)!


On this day we got a visit from one of our favorite PICU nurses!!!  We love Jama and were so blessed that she wanted to come visit and see how Trent was doing.  She will always hold a special place in our hearts!




Thank you for visiting us Jama!

Trent had asked all weekend if he could wash his steer so he finally got to.  His last really fun memory before his bleed was spent up at the Jr Livestock Show with this big guy!  I caught him trying to give Junior a kiss but also being quick to move in case that big tongue came out to kiss him back!




The rest of the afternoon was spent in and out of the pool (he hasn't been cleared to swim with his head underwater yet, so he basically just walks around or sits on the floaty). 


A couple pictures from dinner, minus some family members:)  Trace was at a birthday party, Lola fell asleep (watching Zootopia again!) and Charly was at work.



Of course I didn't get anymore pictures the rest of the night (oops), but they fed steers and ended their night watching Monty Walsh with Charly and went to bed:)

Have a blessed day!

Shelby